Connect with others who understand.

Sign up Log in
About MyMelanomaTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of MyMelanomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Are You Frustrated With Finding Effective Treatments For Melanoma?

By A MyMelanomaTeam Member 14 answers

What Is Wide Excision?

By A MyMelanomaTeam Member 4 answers

What Sun Protection Methods Do You Use Daily? 🌞🧴

By A MyMelanomaTeam Member 11 answers

Who Has Or Is Doing Immunotherapy With Ipi/nivo (OPDIVO/yervoy)? What Has Been Your Experience?

By A MyMelanomaTeam Member 22 answers
78 questions

I Have Upcoming Surgery On My Axillary Lymph Nodes. I Was Wondering What The Recovery Looks Like. Staying Mostly Positive.

A MyMelanomaTeam Member asked a question 💭
Los Angeles, CA

Stage 3 melanoma without known origins. Clean CT. Upcoming PET scan to rule out.

A MyMelanomaTeam Member

Sorry brother for your struggles. Thank you for your frank appraisal. It's better to know moving forward what may be ahead.

September 6

Which Melanoma Symptom Surprised You The Most?

A MyMelanomaTeam Member asked a question 💭
San Francisco, CA
A MyMelanomaTeam Member

Yup, watch out for melanoma possibilities anywhere on you, or in you. None of mine were on my skin, or in my eyes, etc. I've had two tumors in my left brain and three in left lung. That's the only two… read more

4 days ago

What Sun Protection Methods Do You Use Daily? 🌞🧴

A MyMelanomaTeam Member asked a question 💭
San Francisco, CA

Share your favorite sunscreens, clothing, or routines to protect your skin. Your tips can help others find effective ways to protect themselves from the sun.

Comment below with your sun protection methods and let’s help each other stay safe! 💬

A MyMelanomaTeam Member

Wide brim hat and sun blocking sleeves for my arms

August 28

Has Anyone Been On The Chemo Pill Called Temodar (temozolomide). If So, What Has Been The Benefit Vs. The Side Effects.

A MyMelanomaTeam Member asked a question 💭
Rumson, NJ

Metastatic Melanoma, brain, bone, lung, etc. Immuno did not work, have been on chemo duo pills for 8 months. Body cancer doing well but brain cancer is growing expediential. Already had a few GammaKnife treatments and brain surgery to remove a tumor to identify the type of cancer. Had melanoma 25 years ago, early stage but after diagnosed with MSA (multiple systems atrophy) all hell broke loose.
Thank you for any insight you can provide regarding what to expect from Temodar.

A MyMelanomaTeam Member

Temozolomide, also known as Temodar, is a chemotherapy drug available in oral capsule form. It is used to treat melanoma that has metastasized (spread to other parts of the body).

Benefits
-… read more

August 12

Kaytruda Infusions Are Making Me Loose My Hair...is Anyone Else Experiencing This Side Effect? I Need A Hat Or Wig It's So Bad....

A MyMelanomaTeam Member asked a question 💭
San Juan Capistrano, CA
A MyMelanomaTeam Member

Hi Nat, I took Odivo (similar to Keytruda) and I have experienced some hair loss, but not so much that I need a hat. I know that one of the side effects of immunotherapy is dry skin, and I wonder if… read more

August 4

What Are Your Top Tips For Dealing With Melanoma In The Heat?

A MyMelanomaTeam Member asked a question 💭
San Francisco, CA
A MyMelanomaTeam Member

All good thanks for asking have a great weekend

20 hours ago

Just Told My Biopsy Is Melanoma In Situ And Kind Of Freaked Out.

A MyMelanomaTeam Member asked a question 💭

The said biopsy showed in situ at lateral border and have to have excision now. But I’m worried about the possibility that they say it’s not in situ but worse once they do the excision.

A MyMelanomaTeam Member

I was diagnosed in May of this year and I had such bad anxiety, that my doctor put me on Klonipin. It has helped immensely. I've had 5 sessions of immunotherapy and WLE. Now that I've gotten into a… read more

July 23

Are You Or A Loved One With Melanoma A Military Veteran?

A MyMelanomaTeam Member asked a question 💭
San Francisco, CA

How challenging is accessing medical care and veterans' benefits for melanoma?

A MyMelanomaTeam Member

Yes Rita, they will. The VA hospital in Nashville, part of the Vanderbilt campus just excised mine and also a lymph gland and sent them to an outside lab for analysis. Thankfully there were clean… read more

July 29 (edited)

What Is The Standard Treatment For Stage IV Melanoma And What Is The Length Of Time Treated?

A MyMelanomaTeam Member asked a question 💭
Los Angeles, CA

I was diagnosed with stage IIB nodular melanoma with a mitotic rate > 20 in 2020 primary lesion was on my back. I had WLE with SLNB which was clear, CT CAP, MRI Brain and PET scan at that time were negative. I was told by my Oncologist at the time that treatment was not approved for stage IIB other than regular scans and close surveillance. fast forward to July 2022 I developed neurological symptoms while on vacation in Costa Rica. Upon arrival back home I went to ER and was diagnosed with brain… read more

A MyMelanomaTeam Member

see answer to dawn 4 above from an experienced stage 4 guy

August 10

Do(or Have) The Effects Of Keytruda Increased As You Get Further In To Them. I Have Had 10 So Far.

A MyMelanomaTeam Member asked a question 💭
Las Cruces, NM
A MyMelanomaTeam Member

Still very sore. Strep culture negative but Doc believes that a different bacterial infection. On a:new antibiotics (levoflaxocin). it seems to be helping. It's been over three weeks

July 13
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of Use, and our Health Data and Privacy policies.
Already a Member? Log in