Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMelanomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
May 18, 2024
 · 
Reactions

Answer Summary

Members openly shared their experiences with melanoma that had spread to the brain, with many describing treatments that included Gamma Knife... Read more

Members openly shared their experiences with melanoma that had spread to the brain, with many describing treatments that included Gamma Knife radiosurgery, stereotactic radiation, surgical removal of tumors, and immunotherapy drugs like Opdivo and Yervoy. Several members explained that radiation was often preferred over surgery to avoid delaying systemic immunotherapy, noting that immunotherapy alone struggles to cross the blood-brain barrier effectively. A recurring theme was the community's resilience and support for one another through fear and loss, with members offering prayers, encouragement, and solidarity as they navigated difficult treatment decisions and uncertain outcomes together.

A MyMelanomaTeam Member

And best of luck to you Sharon.

May 25, 2024
A MyMelanomaTeam Member

My cancer was also found in my brain a year and a half ago. They removed the tumor and I had a gamma knife procedure. Have been on immunotherapy since then. Have had ups and downs but they keep fixing whatever breaks. So staying positive and following instructions.

May 25, 2024
A MyMelanomaTeam Member

I have, for one lesion I was given the option of steriotactic radiosurgery (targeted radiation) or surgery, but surgery was not recommended as I didn't really have any major symptoms and it would delay starting immunotherapy needed for the rest of the tumors. The 2nd lesion was very small and farther in so radiation was really the only option. I guess I actually had a third option of only doing immunotherapy but it has trouble getting through the brain barrier, so I opted for radiation. So far it's worked.

May 20, 2024
A MyMelanomaTeam Member

Upon finding Metastatic Malignant Melonoma in my liver my oncologist ordered a brain scan. Two tumors showed up.
He sent me to a Radiation Oncologist Radiation Oncology Dr.
He performed a Gamma Knife treatment last March and distroyed the tumors.
I will go for a brain scan in June to determine just how good it went. I feel it went well because I have no symptoms.
For my liver, I'm being treated with "check point inhibitors". Opdivo and Yervoy.
I've had three infusions and will take my fouth this coming Thursday.

May 18, 2024
A MyMelanomaTeam Member

My prayers are with you💕

May 22, 2024

Related Questions

View All
A MyMelanomaTeam Member asked a question 💭
Alexandria, VA

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In