Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMelanomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMelanomaTeam Member asked a question 💭
Plymouth, UK

Finished 12 months immunotherapy treatment in July. Taking hydrocortisone as affected adrenal gland. Feeling ok in myself apart from continued tiredness. Is this usual.?Any suggestions to combat this?

September 19, 2025
 · 
Reactions
A MyMelanomaTeam Member

I have been on.an infusion of nivolumab /relatlimab for 5 months with few side effects other than lack of energy and a rash that was cleared quickly with Beladerm cream.
On occasion I have had very loose stool which lasts a day, sometimes just one bowel movement and the nodule in my left lung has apparently shrunk as shown on latest PET scan. I feel very fortunate to be having Immunotherapy.

May 14
A MyMelanomaTeam Member

B- 12 injections weekly have helped me. Currently out for a month and I can sure tell the difference!!

March 13
A MyMelanomaTeam Member

Getting nivolumab also I'm so tired it's been 16 months

May 11
A MyMelanomaTeam Member

The immunotherapy messed up my pituitary,adrenal and thyroid glands. Taking 5mg prednisolone daily. I feel your pain, the fatigue I have is really awful, just feel completely drained, still having treatment atm. The big downside gor me is being recently diagnosed with motor neurone disease, guess I got the short straw. Life is just very difficult at present. All I can suggest is to take breaks when you're busy, which is what I have to do. I wish you well.

May 7
A MyMelanomaTeam Member

If you're still tired, you might need a bit more hydrocortisone. I'm four years into this and the 5mg I take in the morning and 2.5mg in the evening are barely enough.

October 27, 2025

Related Questions

View All
A MyMelanomaTeam Member asked a question 💭
Florida City, FL