Hi Rita... thanks for your response. I will be taking my 4th Humira injection this week for the arthritis and am starting taper on Prednisone. I am also taking MTX. Since starting the Humira, I do feel better overall, have more energy and drive. Would like joint pain to decrease some... hoping the next injection will do that. Feeling much better overall, I might be able to resume novimulab alone in a month or so. Oncologist is going to do a PET scan soon to confirm NED!....It would be nice if I'd be in remission....

Thanks again

Prayers for maintaining a low level
Of inflammation. I had the same when I went through immunotherapy. And am just now coming off of plaquenil after 2 years. I was on Prednisone for a year before that to get the inflammation under control. My knees swelled so bad I couldn’t walk. I hope the inflammation stays at bay. But God - I have no evidence of disease (NED). For 3 years now. Hard to complain about anything when I had 7 tumors including 2 in the brain.

Update: Went on steroids (high dose) with some improvement in swelling/pain but not enough. I am now taking Methotrexate for Arthritis and reducing Steroid dosage. After only a few weeks, I am feeling much improved and starting on a single drug (nivolumab) next week.